

Surviving hemophilia A road trip through the world of healthcare
Paperback240 pagina’sNederlands
Ook verkrijgbaar als
Hemophilia is one of the most well-known rare diseases in the world. It is a genetic disease, where men have hemophilia and women are carriers. A person with hemophilia lacks the genetic information to produce one of the proteins needed for blood clotting. Most hemophiliacs have a shortage of factor VIII, causing hemophilia A, whereas a smaller population lacks factor IX, causing hemophilia B.This book tells the story of Cees Smit, who was born with hemophilia A almost seventy years ago. No one ever expected him to survive long into adulthood, much less old age. He survived all stages of medical innovations, with both highlights and drawbacks. Today he is a lobbyist for patients’ rights and the improvement of patients’ position in the healthcare system.One of his major concerns is the large-scale trade in human blood plasma—a topic he has discussed in various publications since 1979. Amidst the COVID-19 pandemic, this book has even more meaning, urging us to return to the traditional ideals of altruism, self-sufficiency, unity, and solidarity.This story is a tribute to a large group of professionals who have supported him, including doctors, nurses, friends, and family. It is an homage to the wonderful people he met during the AIDS crisis—most of whom have since died. It is for them that this history of hemophilia, hepatitis, and HIV is written.Marcel Levi, Chief Executive of the University College London Hospitals, writes in his foreword to the book: ‘Cees Smit’s story is extremely relevant […] the story warns us that caution should be exercised because unexpected side effects can have disastrous consequences. It is also a stark reminder that commercial value and the pursuit of profit are not always in sync with the interests of sick people.’
In het kort
ISBN-13
9789463012911
Uitgever
Verschenen
17 augustus 2020
Imprint
Bibliografisch
ISBN-139789463012911
Editie1
TaalNederlands dut
Pagina’s240
GeïllustreerdJa
Uitgave
UitgeverEburon Uitgeverij B.V.
ImprintEburon
CB-relatie-id7804140
Verschenen17 augustus 2020
StatusInactief 08
BeschikbaarheidContact leverancier 99
Adviesprijs (incl. btw)€ 25,00
Vorm & inhoud
ProductvormPaperback BC
SamenstellingLos product
Classificatie
NUR (hoofd)Geneeskunde algemeen 870
NUR (alle)870 Geneeskunde algemeen
Trefwoordenaids · hemofilie · bloedtransfusie · plasma
Medewerkers
Auteur A01Cees Smit
Redacteur B01Annemarie de Knecht-van Eekelen
Herkomst
Werk-id (NSTC)500833538
MeldingBevestigd bij publicatie 03
Bijgewerkt6 augustus 2026
Trefwoorden
Lijkt op dit boek
NSTC 500833538 · CB-relatie 7804140 · Bijgewerkt 6 augustus 2026









